Category: The Second Year

• Well, that was sort of an earthquake…

  

  It was a little before 11 in the morning and I’d already up hours. I flopped down onto the couch after my final set of squats. Pulling out my phone, I scrolled through my Facebook feed for a few minutes after finishing my morning workout. Time to catch a breather before eating my second meal…

  ellie

  September 14, 2016

  Ramblings, Random Posts, The Second Year, The Stroke Story, Updates

  ABI, acquired brain injury, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, disability, hemiparesis, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, operation, Recovery, seizure, seizures, stroke, stroke recovery, TBI, The Stroke Story, TIRR, Tremor, tremor disorder, trike, visual field cut, young adult stroke, Young stroke, YSS

• Seizures suck.

  A very quick recap of yesterday: I began having seizures just before 11am CT yesterday. I don’t remember much and was pretty confused for a while. Anyway, I’m home now and am getting scheduled for tests this week. Jeffrey’s DBS surgery is early tomorrow morning; I’m hoping that I can still go to that.  The…

  ellie

  September 12, 2016

  The Second Year, The Stroke Story, Updates

  ABI, acquired brain injury, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, disability, hemiparesis, hemiplegia, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Mischer Neuroscience Institute, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, YSS

• Vertigo cont. plus an AFO!

  

  “May I have your date of birth and is the member ID number on the back of your insurance card?” I wanted to cry. My prescription was going to be filled and, soon, the world would stop spinning and I’d be able to close my eyes without feeling this feeling. Vertigo sucks. I read my…

  ellie

  August 5, 2016

  The Second Year, The Stroke Story, Updates, Writing

  ABI, acquired brain injury, AFO, Allard, ankle foot orthosis, anomia, aphasia, ataxia, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, depression, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Hermann, Peace Cycling Performance, Recovery, Steven Peace, stroke, stroke recovery, The Stroke Story, TIRR, Tremor, tremor disorder, trike, young adult stroke, Young stroke, young stroke survivor, YSS

• Vertigo and Wernicke’s aphasia

  ellie

  August 4, 2016

  The Second Year, The Stroke Story, Updates, Videos

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, prism glasses, prism lenses, Recovery, stroke, stroke recovery, The Stroke Story, TIRR, Tremor, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• Is this really worth it? Yeah. It is. 

  Real friends – people are worth it. ‘People are precious, and sometimes we forget that. …they need friends, they need love. …love everybody, even the little and dumb and fat and ugly and weird, and, well, if we all lived like that, then maybe terrible things like we’ve just seen wouldn’t happen… and I guess…

  ellie

  July 25, 2016

  The Second Year, Updates

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, hemiparesis, Intention tremor, ischaemic stroke, left hemisphere ischemia, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, YSS

• 4th post-surgery programming

  ellie

  July 22, 2016

  Random Posts, The Second Year, Updates, Videos

  ABI, acquired brain injury, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, hemiplegia, ischaemic stroke, left hemisphere ischemia, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, YSS

• Worst month/best month 

  ellie

  July 21, 2016

  The Second Year, Updates, Videos

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, Intention tremor, ischaemic stroke, left hemisphere ischemia, MRI, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, u

• What will things be like for you in a year?

  Well, I don’t know. I’ve been asked a few times since having DBS surgery and I don’t know is the simplest answer that I could come up with. I definitely hope that I’ll be where the gentleman in the below video is, but there’s no way for me or anyone else to predict that. The…

  ellie

  June 28, 2016

  Ramblings, The Second Year, The Stroke Story

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, hemiplegia, Intention tremor, ischaemic stroke, left hemisphere ischemia, prism glasses, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, University Eye Institute, University of Houston, visual field cut, young adult stroke, Young stroke, YSS

• Prism Glasses

  I can’t even begin to describe what this is like. Sure, I can describe what this looks like. But I can’t describe the feelings that go with it. This is freaking amazing. I haven’t seen so much at once in so long. It’s not perfect, but I can see. I can’t believe I’ve missed so…

  ellie

  June 27, 2016

  The Second Year, The Stroke Story, Updates

  ABI, acquired brain injury, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar stroke, Cerebellum, Dr. Suzanne Wickum, ischaemic stroke, left hemisphere ischemia, prism glasses, prism lenses, Recovery, stroke, stroke recovery, The Stroke Story, University Eye Institute, University of Houston, young adult stroke, Young stroke, YSS

• Brain matters

  The above is an image from a series of MRIs that were taken within days of the stroke. The dark grey area is the area that was affected by oxygen loss during the stroke. That area is now dormant or idling. Someone asked me to talk about the physical changes in my brain, so I’m…

  ellie

  November 21, 2015

  The Second Year, The Stroke Story, Updates

  ABI, anomia, aphasia, ataxia, brain injury, cerebellar ataxia brain stem, MRI, Recovery, stroke, TBI, The Stroke Story, young adult stroke