Updates Category
5
Posted on January 5, 2019 1 Comment
I’m 5 years, 2 months and 2 days post-stroke. (Likely 5 years, 2 months and 3 days, by the time I finish writing this. It’s late.) 5 years. 5. That’s half a decade. Oy. 3 months and 4 days since I last updated this site. Sorry about that; I just wanted to step back for […]
Thank you
Posted on September 4, 2018 Leave a Comment
The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen.
Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set of non-toxic, skin-safe markers. Now I draw on myself…
Journal entry #4
Posted on August 11, 2018 1 Comment
Tomorrow, I will be cheerful. Tomorrow, I will be positive. Tomorrow, I will have energy. Because today, I just can’t. Today I am hurting. Today, I am not okay. And that is perfectly fine. Just writing that made me smile. See? Already getting there. 🙂
It’s [already] been a long day… But it’ll get better. :)
Posted on March 21, 2018 3 Comments
I don’t know what triggers me anymore. What’s wrong? Oh, nothing, really. I’m just anxious. Depressed. Broken. Angry. Tired. Bored. Busy. Aphasiac. Worthless. A burden. A hindrance. Frustrated. ‘Lazy’. Working my ass off to simply go check the mail. Tired. Useless. Stressed. Worried. Frustrated. (Yes, let’s list that one again.) I’m in everyone’s way, all […]
Misremembering is better than forgetting
Posted on February 11, 2018 Leave a Comment
Remembering Grace, again. And again. This year, I thought it would be 9 years within the hour. Nope. It’ll be 9 years in 48 hours and 38 minutes. Memory difficulties suck. She’d be 8 this July. There’s too much to write. I’ll sleep on it. Thinking of you, Gracie. Always am. ❤
New batteries make my brain go ’round
Posted on January 26, 2018 Leave a Comment
I squealed after setting my cell phone on the kitchen counter and excitedly bounced on my toes – while holding onto the counter, of course – for a moment, then turned to place my medicine bottles back in the cupboard above my head. It must seen strange, my looking forward to another surgery. Let me […]
‘Lucky #13’
Posted on December 15, 2017 Leave a Comment
So, I just checked my email. Thanks to everyone who takes the time to read this! Thanks, Alex, for writing about your stroke; it was the first book I had read after mine. Feedspot Top 25
Journal entry #1
Posted on December 7, 2017 Leave a Comment
I wake rather late, but cheerful nonetheless. I don’t feel entirely cheerful; it’s a chilly, rainy morning and I know that I might get low if I don’t urge myself not to. I wobble into the kitchen. Make tea. Start the monotonous routine I’ve come to know since the “lows” made their appearance known a […]
Posted on November 6, 2017 Leave a Comment
My father is heading into an operating room for heart surgery. Not sure what to think.
Updatiness!
Posted on September 22, 2017 Leave a Comment
It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds at McGovern. The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us […]
