Category: Videos

• #LifeIsBeautiful

  We have no control over it, but what we do have control over is whether we can be proud of our own lives. I mean, that’s something we have complete say over – it’s kind of hard to even describe – I think I’m just as confused as everyone else on how to make our lives a piece of art, but I think that’s part of the joy – simply trying. I can stand up here and genuinely tell you that I am genuinely proud of my life…

  ellie

  May 17, 2018

  Random Posts, Videos

  #LifeIsBeautiful, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, HandiQueers, hemiparesis, hemiplegia, human trafficking, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, miscarriage, NAF, National Ataxia Foundation, neuropsychiatry, operation, perspective, pneumonia, pregnancy, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• -364 days

  

  1 year ago – Monday, May 16 2016 I waited, excited and nervous. Tomorrow. A burr hole will expose the surface of my brain for the very first time… tomorrow. Less than 24 hours. I don’t remember what I did that morning, or the days leading up to it. I know that I watched videos […]

  ellie

  May 16, 2017

  ataxia, Memories, Photos, The Stroke Story, The Third Year, Updates, Videos

  ABI, acquired brain injury, ataxia, awake brain surgery, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, FA, FARA, Friedreich’s Ataxia, handicap, hemiparesis, Houston Medical Center, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, NAF, National Ataxia Foundation, operation, Recovery, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, Videos, young adult stroke, Young stroke, young stroke survivor, YSS

• Vertigo and Wernicke’s aphasia

  ellie

  August 4, 2016

  The Second Year, The Stroke Story, Updates, Videos

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, prism glasses, prism lenses, Recovery, stroke, stroke recovery, The Stroke Story, TIRR, Tremor, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• 4th post-surgery programming

  ellie

  July 22, 2016

  Random Posts, The Second Year, Updates, Videos

  ABI, acquired brain injury, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, hemiplegia, ischaemic stroke, left hemisphere ischemia, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, YSS

• Worst month/best month 

  ellie

  July 21, 2016

  The Second Year, Updates, Videos

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, Intention tremor, ischaemic stroke, left hemisphere ischemia, MRI, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, u

• So, I forgot to upload some stuff…

  …like pre and post-surgery stuff. Thanks for the reminder, Jeff! Below is a quick video of me at my movement disorder specialist’s office before programming. Literally just before. I was actually there to get programmed and they took a video of a movement before programming me. Next is a video of my walking 1 week […]

  ellie

  June 27, 2016

  The Stroke Story, The Third Year, Updates, Videos

• Quick update!

  ellie

  June 20, 2016

  The Stroke Story, The Third Year, Updates, Videos

• DBS: Post-surgery & programming upddate

  ellie

  June 7, 2016

  The Stroke Story, The Third Year, Updates, Videos

  ABI, acquired brain injury, ataxia, awake brain surgery, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, hemiplegia, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Mischer Neuroscience Institute, MRI, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• WARNING: Graphic content. DBS surgery videos

  I forgot to upload them, but here they are. Enjoy!

  ellie

  May 27, 2016

  The Stroke Story, The Third Year, Updates, Videos

  ABI, acquired brain injury, ataxia, awake brain surgery, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, hemiplegia, Intention tremor, ischaemic stroke, left hemisphere ischemia, Memorial Hermann Hospital, Mischer Neuroscience Institute, Recovery, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, YSS

• DBS: Post-surgery & pre-programming update

  ellie

  May 24, 2016

  The Stroke Story, The Third Year, Updates, Videos

  ABI, acquired brain injury, brain stem tremor, cerebellar ataxia, DBS, deep brain stimulation, Houston Medical Center, Intention tremor, ischemic stroke, kinetic tremor, Medtronic DBS, Memorial Hermann Hospital, Mischer Neuroscience Institute, Young stroke, young stroke survivor, YSS