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The Quitter

Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

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Better Than New 

After my last post, my friend, Elizabeth, wrote this to me: ‘Ellie if you are feeling broken, please remember the Japanese process of Kintsugi. Pottery that is broken is repaired with gold. It highlights that the mended repair is beautiful. It emphasizes  beauty in the imperfect. Perfection  is overrated. Your brain is wonderful just the […]

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When hope is not enough

Action and reaction, cause and effect, dendritic output and neuronal necrosis – what, and to what effect? My body doesn’t obey, though it wants to. It has to want to. I need it to want to.  It doesn’t obey but that doesn’t matter anyway. Because I wasn’t born with it and didn’t inherit it, so […]

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Seizures suck.

A very quick recap of yesterday: I began having seizures just before 11am CT yesterday. I don’t remember much and was pretty confused for a while. Anyway, I’m home now and am getting scheduled for tests this week. Jeffrey’s DBS surgery is early tomorrow morning; I’m hoping that I can still go to that.  The […]

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Vertigo cont. plus an AFO!

“May I have your date of birth and is the member ID number on the back of your insurance card?” I wanted to cry. My prescription was going to be filled and, soon, the world would stop spinning and I’d be able to close my eyes without feeling this feeling. Vertigo sucks. I read my […]

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Is this really worth it? Yeah. It is. 

Real friends – people are worth it. ‘People are precious, and sometimes we forget that. …they need friends, they need love. …love everybody, even the little and dumb and fat and ugly and weird, and, well, if we all lived like that, then maybe terrible things like we’ve just seen wouldn’t happen… and I guess that’s it.’

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What will things be like for you in a year?

Well, I don’t know. I’ve been asked a few times since having DBS surgery and I don’t know is the simplest answer that I could come up with. I definitely hope that I’ll be where the gentleman in the below video is, but there’s no way for me or anyone else to predict that. The […]

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