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Journal entry #1
Posted on December 7, 2017 Leave a Comment
I wake rather late, but cheerful nonetheless. I don’t feel entirely cheerful; it’s a chilly, rainy morning and I know that I might get low if I don’t urge myself not to. I wobble into the kitchen. Make tea. Start the monotonous routine I’ve come to know since the “lows” made their appearance known a […]
:)
Posted on December 6, 2017 Leave a Comment
Vertigo is kicking my butt today. I’m unable to turn my head and less I do it slowly, lest I want the sudden, overwhelming dizziness to attack. It doesn’t help that I’ve been instructed by one of my doctors to reduce a medication that has a side effect of vertigo, blurred vision and nausea during […]
Updatiness!
Posted on September 22, 2017 Leave a Comment
It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds at McGovern. The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us […]
A random little thing
Posted on September 18, 2017 3 Comments
Okay, so, this was originally a comment response to a post on the Young Stroke Survivors Facebook group. But it turned into a really long comment so I decided to turn it into a blog post. Yay. °°° Note that there are many factors in play when it comes to physical and non-physical recovery, such […]
The Quitter
Posted on May 10, 2017 Leave a Comment
Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service
Better Than New
Posted on March 31, 2017 Leave a Comment
After my last post, my friend, Elizabeth, wrote this to me: ‘Ellie if you are feeling broken, please remember the Japanese process of Kintsugi. Pottery that is broken is repaired with gold. It highlights that the mended repair is beautiful. It emphasizes beauty in the imperfect. Perfection is overrated. Your brain is wonderful just the […]
Remembering Grace, again
Posted on February 15, 2017 3 Comments
8 years, 1 day, 8 hours ago (February 13, 2009, 01:something AM) I’m days from my 20th birthday and I have something that needs to be said before I lose the nerve to say it again. The way he forced me, then acted like he gave a damn when he found out about my baby […]
When hope is not enough
Posted on January 19, 2017 1 Comment
Action and reaction, cause and effect, dendritic output and neuronal necrosis – what, and to what effect? My body doesn’t obey, though it wants to. It has to want to. I need it to want to. It doesn’t obey but that doesn’t matter anyway. Because I wasn’t born with it and didn’t inherit it, so […]
Well, that was sort of an earthquake…
Posted on September 14, 2016 Leave a Comment
It was a little before 11 in the morning and I’d already up hours. I flopped down onto the couch after my final set of squats. Pulling out my phone, I scrolled through my Facebook feed for a few minutes after finishing my morning workout. Time to catch a breather before eating my second meal […]
Seizures suck.
Posted on September 12, 2016 1 Comment
A very quick recap of yesterday: I began having seizures just before 11am CT yesterday. I don’t remember much and was pretty confused for a while. Anyway, I’m home now and am getting scheduled for tests this week. Jeffrey’s DBS surgery is early tomorrow morning; I’m hoping that I can still go to that. The […]
