Tag: brain injury
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1 year
I left the hospital exactly one year ago today.
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, Brainstem, brainstem stroke, cerebellar stroke, Cerebellum, disability, generalized anxiety disorder, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, neuropsychiatrist, neuropsychiatry, perspective, Recovery, seizure, seizures, Suicide, The Stroke Story, TIRR, young adult stroke, Young stroke, young stroke survivor, YSS -
Missing out but it’s fine
Today my Wednesday art class had a video chat lunch together, and I had been looking forward to it since Rafferty first mentioned it a week ago. But I must have needed a rest day today. I woke up late, again, and got ready. I washed my face and threw on the tiny bit of…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, depression, diagnosis, disability, generalized anxiety disorder, handicap, hardship, ischaemic stroke, ischemic stroke, life is beautiful, major depressive disorder, MDD, perspective, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS -
Posting two days in a row?!
I know, right? Who am I? Sleep was fitful last night. I’ve been sleeping through the night lately, but man, the dreams are odd. I’m thankful for the sleep, though. I still have strange nightmares and strange dreams but every now and then I’ll have one that’s so bizarre that I can’t help but hope…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, disability, life is beautiful, quarantine, Recovery, stroke, stroke recovery, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS -
Why I haven’t been posting
Shit happens. I’m in an “up cycle” right now. That’s why I have the energy and motivation to post. Bipolar disorder is far more than just mood swings. So, here what is happening this week: I’ll have phenol injections. Ow. I had a seizure during the last phenol session. This should be fun! Then I’ll…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, Brainstem, brainstem stroke, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, diagnosis, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, handicap, hemiparesis, ICD, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, operation, Recovery, seizure, seizures, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
*facepalm*
I’ve made a mistake. It’s been six years, not 7. Fuck. By the way, get out and vote if you’re American.
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, diagnosis, disability, GAD, handicap, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, MDD, perspective, stroke, stroke recovery, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS -
7
I’m 7 years old today. Technically not, of course, but my life started over 7 years ago today. It started with learning to breathe on my own, then rolling over. Then sitting up; crawling; motorized wheelchair; sitting unassisted; standing; walking with 3 people helping me, then one. Then a walker. Then a cane. Then nothing.…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, Ataxia & Fitness, bipolar, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, HCM, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Memorial Hermann Hospital, operation, perspective, pneumonia, Recovery, seizure, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
#sorrynotsorry
Our Father Who art in heaven Seriously? What the actual fuck. Sincerely, Tired-and-so-done-with-being-a-patient/room-number
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, D&C, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, human trafficking, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, Medtronic DBS, miscarriage, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor -
5
I’m 5 years, 2 months and 2 days post-stroke. (Likely 5 years, 2 months and 3 days, by the time I finish writing this. It’s late.) 5 years. 5. That’s half a decade. Oy. 3 months and 4 days since I last updated this site. Sorry about that; I just wanted to step back for…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, H-Town, handicap, hemiparesis, hemiplegia, Houston, hypertrophic cardiomyopathy, ICD, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
Thank you
The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen. Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Medtronic DBS, neuropsychiatry, perspective, Recovery, social issue, stigma, stroke, stroke recovery, The Stroke Story, trauma, young adult stroke, Young stroke, young stroke survivor, YSS -
Journal entry #4
Tomorrow, I will be cheerful. Tomorrow, I will be positive. Tomorrow, I will have energy. Because today, I just can’t. Today I am hurting. Today, I am not okay. And that is perfectly fine. Just writing that made me smile. See? Already getting there. 🙂
ellie
ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, depression, diagnosis, disability, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, miscarriage, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS
It's never been better 