Tag: brainstem stroke

• 1 year

  I left the hospital exactly one year ago today.

  ellie

  August 24, 2020

  Memories, Photos, The Sixth Year

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, Brainstem, brainstem stroke, cerebellar stroke, Cerebellum, disability, generalized anxiety disorder, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, neuropsychiatrist, neuropsychiatry, perspective, Recovery, seizure, seizures, Suicide, The Stroke Story, TIRR, young adult stroke, Young stroke, young stroke survivor, YSS

• Missing out but it’s fine

  Today my Wednesday art class had a video chat lunch together, and I had been looking forward to it since Rafferty first mentioned it a week ago. But I must have needed a rest day today. I woke up late, again, and got ready. I washed my face and threw on the tiny bit of […]

  ellie

  April 23, 2020

  Ramblings, Random Posts, The Sixth Year, The Stroke Story, Updates

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, depression, diagnosis, disability, generalized anxiety disorder, handicap, hardship, ischaemic stroke, ischemic stroke, life is beautiful, major depressive disorder, MDD, perspective, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS

• Posting two days in a row?!

  I know, right? Who am I? Sleep was fitful last night. I’ve been sleeping through the night lately, but man, the dreams are odd. I’m thankful for the sleep, though. I still have strange nightmares and strange dreams but every now and then I’ll have one that’s so bizarre that I can’t help but hope […]

  ellie

  April 14, 2020

  Ramblings, Random Posts, The Sixth Year, The Stroke Story, Updates, Writing

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, disability, life is beautiful, quarantine, Recovery, stroke, stroke recovery, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS

• Why I haven’t been posting

  Shit happens. I’m in an “up cycle” right now. That’s why I have the energy and motivation to post. Bipolar disorder is far more than just mood swings. So, here what is happening this week: I’ll have phenol injections. Ow. I had a seizure during the last phenol session. This should be fun! Then I’ll […]

  ellie

  March 10, 2020

  ataxia, The Sixth Year, Updates

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, Brainstem, brainstem stroke, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, diagnosis, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, handicap, hemiparesis, ICD, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, operation, Recovery, seizure, seizures, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• *facepalm*

  I’ve made a mistake. It’s been six years, not 7. Fuck. By the way, get out and vote if you’re American.

  ellie

  November 5, 2019

  The Sixth Year, The Stroke Story

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, diagnosis, disability, GAD, handicap, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, MDD, perspective, stroke, stroke recovery, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS

• #sorrynotsorry

  Our Father Who art in heaven Seriously? What the actual fuck. Sincerely, Tired-and-so-done-with-being-a-patient/room-number

  ellie

  July 28, 2019

  Ramblings, Random Posts, The Fifth Year

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, D&C, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, human trafficking, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, Medtronic DBS, miscarriage, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor

• 5

  

  I’m 5 years, 2 months and 2 days post-stroke. (Likely 5 years, 2 months and 3 days, by the time I finish writing this. It’s late.) 5 years. 5. That’s half a decade. Oy. 3 months and 4 days since I last updated this site. Sorry about that; I just wanted to step back for […]

  ellie

  January 5, 2019

  ataxia, Memories, Photos, Ramblings, Random Posts, The Fifth Year, The Stroke Story, Updates

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, H-Town, handicap, hemiparesis, hemiplegia, Houston, hypertrophic cardiomyopathy, ICD, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• Thank you

  

  The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen. Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set of non-toxic, skin-safe markers. Now I draw on myself…

  ellie

  September 4, 2018

  Random Posts, The Fourth Year, Tips, Updates

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Medtronic DBS, neuropsychiatry, perspective, Recovery, social issue, stigma, stroke, stroke recovery, The Stroke Story, trauma, young adult stroke, Young stroke, young stroke survivor, YSS

• Harvey

  Last night I remembered how scared, how alone I’d been during hurricane Harvey. Yeah, I’d busied myself with packing donations. That was before I’d realized I couldn’t get out of the apartment building, or that the atmospheric pressure changes had impacted me as they had. I’m embarrassed to have been so affected when others lived […]

  ellie

  August 12, 2018

  The Fourth Year, The Stroke Story

  #LifeIsBeautiful, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, H-Town, handicap, hardship, hemiparesis, Houston, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, neuropsychiatry, perspective, Recovery, seizure, seizures, stroke, stroke recovery, The Stroke Story, trauma, Tremor, tremor disorder, West University Place

• Journal entry #4

  Tomorrow, I will be cheerful. Tomorrow, I will be positive. Tomorrow, I will have energy. Because today, I just can’t. Today I am hurting. Today, I am not okay. And that is perfectly fine. Just writing that made me smile. See? Already getting there. 🙂

  ellie

  August 11, 2018

  Updates

  ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, depression, diagnosis, disability, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, miscarriage, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS