Tag: brainstem tremor

• Better Than New 

  After my last post, my friend, Elizabeth, wrote this to me: ‘Ellie if you are feeling broken, please remember the Japanese process of Kintsugi. Pottery that is broken is repaired with gold. It highlights that the mended repair is beautiful. It emphasizes  beauty in the imperfect. Perfection  is overrated. Your brain is wonderful just the […]

  ellie

  March 31, 2017

  The Third Year, Tips

  ABI, acquired brain injury, anomia, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, disability, FA, Friedreich’s Ataxia, handicap, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, miscarriage, MRI, operation, pneumonia, pregnancy, rape, Recovery, seizure, seizures, sexual abuse, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• Remembering Grace, again 

  8 years, 1 day, 8 hours ago (February 13, 2009, 01:something AM) I’m days from my 20th birthday and I have something that needs to be said before I lose the nerve to say it again. The way he forced me, then acted like he gave a damn when he found out about my baby […]

  ellie

  February 15, 2017

  Memories, The Stroke Story, The Third Year, Updates

  ABI, acquired brain injury, aphasia, ataxia, brain injury, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, D&C, depression, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, miscarriage, operation, pregnancy, rape, Recovery, sexual abuse, stroke, stroke recovery, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• Lower 

  I have days when things get bad. When too much sensory input collides with my still-healing and forever-damaged brain. I hate these – those – days. I don’t hate it during them, though; I don’t anything them because I don’t feel anything about anything on those days; it’s peaceful, quiet, to feel nothing other than […]

  ellie

  January 27, 2017

  Ramblings, The Stroke Story, The Third Year

  ABI, acquired brain injury, ataxia, brain injury, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Recovery, stroke, stroke recovery, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• When hope is not enough

  Action and reaction, cause and effect, dendritic output and neuronal necrosis – what, and to what effect? My body doesn’t obey, though it wants to. It has to want to. I need it to want to.  It doesn’t obey but that doesn’t matter anyway. Because I wasn’t born with it and didn’t inherit it, so […]

  ellie

  January 19, 2017

  Ramblings, Random Posts, The Third Year

  ABI, acquired brain injury, anomia, aphasia, ataxia, bradycardia, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• Well, that was sort of an earthquake…

  

  It was a little before 11 in the morning and I’d already up hours. I flopped down onto the couch after my final set of squats. Pulling out my phone, I scrolled through my Facebook feed for a few minutes after finishing my morning workout. Time to catch a breather before eating my second meal […]

  ellie

  September 14, 2016

  Ramblings, Random Posts, The Second Year, The Stroke Story, Updates

  ABI, acquired brain injury, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, disability, hemiparesis, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, operation, Recovery, seizure, seizures, stroke, stroke recovery, TBI, The Stroke Story, TIRR, Tremor, tremor disorder, trike, visual field cut, young adult stroke, Young stroke, YSS

• Seizures suck.

  A very quick recap of yesterday: I began having seizures just before 11am CT yesterday. I don’t remember much and was pretty confused for a while. Anyway, I’m home now and am getting scheduled for tests this week. Jeffrey’s DBS surgery is early tomorrow morning; I’m hoping that I can still go to that.  The […]

  ellie

  September 12, 2016

  The Second Year, The Stroke Story, Updates

  ABI, acquired brain injury, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, disability, hemiparesis, hemiplegia, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Mischer Neuroscience Institute, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, YSS

• Vertigo cont. plus an AFO!

  

  “May I have your date of birth and is the member ID number on the back of your insurance card?” I wanted to cry. My prescription was going to be filled and, soon, the world would stop spinning and I’d be able to close my eyes without feeling this feeling. Vertigo sucks. I read my […]

  ellie

  August 5, 2016

  The Second Year, The Stroke Story, Updates, Writing

  ABI, acquired brain injury, AFO, Allard, ankle foot orthosis, anomia, aphasia, ataxia, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, depression, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Hermann, Peace Cycling Performance, Recovery, Steven Peace, stroke, stroke recovery, The Stroke Story, TIRR, Tremor, tremor disorder, trike, young adult stroke, Young stroke, young stroke survivor, YSS

• Is this really worth it? Yeah. It is. 

  Real friends – people are worth it. ‘People are precious, and sometimes we forget that. …they need friends, they need love. …love everybody, even the little and dumb and fat and ugly and weird, and, well, if we all lived like that, then maybe terrible things like we’ve just seen wouldn’t happen… and I guess that’s it.’

  ellie

  July 25, 2016

  The Second Year, Updates

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, hemiparesis, Intention tremor, ischaemic stroke, left hemisphere ischemia, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, YSS

• 4th post-surgery programming

  ellie

  July 22, 2016

  Random Posts, The Second Year, Updates, Videos

  ABI, acquired brain injury, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, hemiplegia, ischaemic stroke, left hemisphere ischemia, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, YSS

• Worst month/best month 

  ellie

  July 21, 2016

  The Second Year, Updates, Videos

  ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, Intention tremor, ischaemic stroke, left hemisphere ischemia, MRI, Recovery, stroke, stroke recovery, The Stroke Story, Tremor, tremor disorder, u