Tag: deep brain stimulation
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What it is to burn
July 24, 2019 The confusion and my slowed heart rate made it hard for me to make sense of things. Stumbling into the living room, I called the Dr. Scheiss’ office. Dr. Scheiss’ nurse practitioner answered and I began telling her things – I don’t remember what things. Then it was the nurse practitioner, the…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, Cerebellum, DBS, deep brain stimulation, depression, disability, Dr. Mya Scheiss, GAD, generalized anxiety disorder, hardship, life is beautiful, major depressive disorder, MDD, Memorial Hermann, Memorial Hermann Hospital, seizure, seizures, stigma, Suicide, TIRR, trauma, young adult stroke, Young stroke, young stroke survivor, YSS -
Why I haven’t been posting
Shit happens. I’m in an “up cycle” right now. That’s why I have the energy and motivation to post. Bipolar disorder is far more than just mood swings. So, here what is happening this week: I’ll have phenol injections. Ow. I had a seizure during the last phenol session. This should be fun! Then I’ll…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, Brainstem, brainstem stroke, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, diagnosis, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, handicap, hemiparesis, ICD, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, operation, Recovery, seizure, seizures, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
#sorrynotsorry
Our Father Who art in heaven Seriously? What the actual fuck. Sincerely, Tired-and-so-done-with-being-a-patient/room-number
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, D&C, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, human trafficking, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, Medtronic DBS, miscarriage, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor -
5
I’m 5 years, 2 months and 2 days post-stroke. (Likely 5 years, 2 months and 3 days, by the time I finish writing this. It’s late.) 5 years. 5. That’s half a decade. Oy. 3 months and 4 days since I last updated this site. Sorry about that; I just wanted to step back for…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, H-Town, handicap, hemiparesis, hemiplegia, Houston, hypertrophic cardiomyopathy, ICD, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
Thank you
The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen. Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Medtronic DBS, neuropsychiatry, perspective, Recovery, social issue, stigma, stroke, stroke recovery, The Stroke Story, trauma, young adult stroke, Young stroke, young stroke survivor, YSS -
#LifeIsBeautiful
We have no control over it, but what we do have control over is whether we can be proud of our own lives. I mean, that’s something we have complete say over – it’s kind of hard to even describe – I think I’m just as confused as everyone else on how to make our…
ellie
#LifeIsBeautiful, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, HandiQueers, hemiparesis, hemiplegia, human trafficking, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, miscarriage, NAF, National Ataxia Foundation, neuropsychiatry, operation, perspective, pneumonia, pregnancy, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
Journal entry #7
Have you ever been sitting around, doing whatever, and then suddenly and out of nowhere you feel… different, somehow? Sort of like you’ve been locked in your body for several years and you’ve just woken up, even though you’ve been conscious all those years, you’re suddenly… aware. Alive, again. This might seem odd but something…
ellie
ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, deep brain stimulation, depression, diagnosis, disability, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, neuropsychiatry, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
New batteries make my brain go ’round
I squealed after setting my cell phone on the kitchen counter and excitedly bounced on my toes – while holding onto the counter, of course – for a moment, then turned to place my medicine bottles back in the cupboard above my head. It must seen strange, my looking forward to another surgery. Let me…
ellie
ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, handicap, hemiparesis, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
Journal entry #3
I’ve left the apartment three times in the last week and a half, maybe. Once to Jamie and Tim’s house to create characters for a new campaign *pushes glasses up nose*, and the other two times were probably something small; I don’t remember exactly what. My world currently consists of what’s contained inside of this 900…
ellie
acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hemiparesis, Intention tremor, ischaemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, neuropsychiatrist, neuropsychiatry, perspective, Recovery, social issue, stroke, stroke recovery, TBI, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
:)
Vertigo is kicking my butt today. I’m unable to turn my head and less I do it slowly, lest I want the sudden, overwhelming dizziness to attack. It doesn’t help that I’ve been instructed by one of my doctors to reduce a medication that has a side effect of vertigo, blurred vision and nausea during…
ellie
ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, Medtronic DBS, Mischer Neuroscience Institute, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, Recovery, seizure, seizures, slavery, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS
It's never been better 