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-364 days

1 year ago – Monday, May 16 2016 I waited, excited and nervous. Tomorrow. A burr hole will expose the surface of my brain for the very first time… tomorrow. Less than 24 hours. I don’t remember what I did that morning, or the days leading up to it. I know that I watched videos […]

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The Quitter

Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

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Wheels

I wake sometime between 5 and 6, as usual. Get up, tell Alexa to turn on the bedroom lights. Pad into the washroom. I’m extra wobbly in the morning so I have Alexa turn on the kitchen lights while I grasp the counter and carefully step my way to the corner where my morning dose of Sertraline (the generic of Zoloft, for […]

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To Mars and back

2017 didn’t make it past its first day before someone with Ataxia went away. She touched so many lives during her 25 years here. This morning, Noelle and Allie – a couple of my favorite people whom I met through Ataxia & Fitness – were absolutely… I don’t know. I don’t speak for them, but “heartbroken” and “stunned” are a […]

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USF ftw

Yay, Kyle! Let me know the next time you cycle across America, mkay? An Ataxia&Fitness group ride across America needs to be a thing! “Both have Friedreich’s ataxia, affecting one in 50,000 people in the United States. Although Bryant and Bridgman are left wheelchair bound, their competitive spirit hasn’t gone away. Now focusing on a […]

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