Tag: FARA

• -364 days

  

  1 year ago – Monday, May 16 2016 I waited, excited and nervous. Tomorrow. A burr hole will expose the surface of my brain for the very first time… tomorrow. Less than 24 hours. I don’t remember what I did that morning, or the days leading up to it. I know that I watched videos…

  ellie

  May 16, 2017

  ataxia, Memories, Photos, The Stroke Story, The Third Year, Updates, Videos

  ABI, acquired brain injury, ataxia, awake brain surgery, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, FA, FARA, Friedreich’s Ataxia, handicap, hemiparesis, Houston Medical Center, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, NAF, National Ataxia Foundation, operation, Recovery, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, Videos, young adult stroke, Young stroke, young stroke survivor, YSS

• The Quitter

  Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

  ellie

  May 10, 2017

  Poetry, Random Posts, The Third Year

  ABI, acquired brain injury, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, disability, FA, FARA, Friedreich’s Ataxia, handicap, HandiQueers, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, Mount Kilimanjaro, NAF, National Ataxia Foundation, operation, pneumonia, Recovery, seizure, seizures, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• Wheels

  I wake sometime between 5 and 6, as usual. Get up, tell Alexa to turn on the bedroom lights. Pad into the washroom. I’m extra wobbly in the morning so I have Alexa turn on the kitchen lights while I grasp the counter and carefully step my way to the corner where my morning dose of Sertraline (the generic of Zoloft, for…

  ellie

  April 20, 2017

  ataxia, The Stroke Story, The Third Year, Updates

  ABI, ACA, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, AFO, ankle foot orthosis, ataxia, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, disability, FARA, handicap, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Park, National Ataxia Foundation, Recovery, seizure, seizures, stroke, stroke recovery, Tremor, tremor disorder, Videos, young adult stroke, Young stroke, young stroke survivor, YSS

• To Mars and back

  2017 didn’t make it past its first day before someone with Ataxia went away. She touched so many lives during her 25 years here. This morning, Noelle and Allie – a couple of my favorite people whom I met through Ataxia & Fitness – were absolutely… I don’t know. I don’t speak for them, but “heartbroken” and “stunned” are a…

  ellie

  January 1, 2017

  The Stroke Story, The Third Year, Updates

  ataxia, Ataxia & Fitness, cardiac arrest, cardiomyopathy, disability, FA, FARA, Friedreich’s Ataxia, handicap, HandiQueers, HCM, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, LGBTQ

• USF ftw

  Yay, Kyle! Let me know the next time you cycle across America, mkay? An Ataxia&Fitness group ride across America needs to be a thing! “Both have Friedreich’s ataxia, affecting one in 50,000 people in the United States. Although Bryant and Bridgman are left wheelchair bound, their competitive spirit hasn’t gone away. Now focusing on a…

  ellie

  September 18, 2015

  Random Posts

  ataxia, Ataxia & Fitness, FARA, Kyle Bryant, trike