Tag: GAD
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What it is to burn
July 24, 2019 The confusion and my slowed heart rate made it hard for me to make sense of things. Stumbling into the living room, I called the Dr. Scheiss’ office. Dr. Scheiss’ nurse practitioner answered and I began telling her things – I don’t remember what things. Then it was the nurse practitioner, the…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, Cerebellum, DBS, deep brain stimulation, depression, disability, Dr. Mya Scheiss, GAD, generalized anxiety disorder, hardship, life is beautiful, major depressive disorder, MDD, Memorial Hermann, Memorial Hermann Hospital, seizure, seizures, stigma, Suicide, TIRR, trauma, young adult stroke, Young stroke, young stroke survivor, YSS -
*facepalm*
I’ve made a mistake. It’s been six years, not 7. Fuck. By the way, get out and vote if you’re American.
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, diagnosis, disability, GAD, handicap, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, MDD, perspective, stroke, stroke recovery, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS -
7
I’m 7 years old today. Technically not, of course, but my life started over 7 years ago today. It started with learning to breathe on my own, then rolling over. Then sitting up; crawling; motorized wheelchair; sitting unassisted; standing; walking with 3 people helping me, then one. Then a walker. Then a cane. Then nothing.…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, Ataxia & Fitness, bipolar, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, HCM, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Memorial Hermann Hospital, operation, perspective, pneumonia, Recovery, seizure, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
#sorrynotsorry
Our Father Who art in heaven Seriously? What the actual fuck. Sincerely, Tired-and-so-done-with-being-a-patient/room-number
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, D&C, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, human trafficking, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, Medtronic DBS, miscarriage, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor -
5
I’m 5 years, 2 months and 2 days post-stroke. (Likely 5 years, 2 months and 3 days, by the time I finish writing this. It’s late.) 5 years. 5. That’s half a decade. Oy. 3 months and 4 days since I last updated this site. Sorry about that; I just wanted to step back for…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, H-Town, handicap, hemiparesis, hemiplegia, Houston, hypertrophic cardiomyopathy, ICD, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
Thank you
The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen. Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Medtronic DBS, neuropsychiatry, perspective, Recovery, social issue, stigma, stroke, stroke recovery, The Stroke Story, trauma, young adult stroke, Young stroke, young stroke survivor, YSS -
Harvey
Last night I remembered how scared, how alone I’d been during hurricane Harvey. Yeah, I’d busied myself with packing donations. That was before I’d realized I couldn’t get out of the apartment building, or that the atmospheric pressure changes had impacted me as they had. I’m embarrassed to have been so affected when others lived…
ellie
#LifeIsBeautiful, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, H-Town, handicap, hardship, hemiparesis, Houston, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, neuropsychiatry, perspective, Recovery, seizure, seizures, stroke, stroke recovery, The Stroke Story, trauma, Tremor, tremor disorder, West University Place -
#LifeIsBeautiful
We have no control over it, but what we do have control over is whether we can be proud of our own lives. I mean, that’s something we have complete say over – it’s kind of hard to even describe – I think I’m just as confused as everyone else on how to make our…
ellie
#LifeIsBeautiful, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, HandiQueers, hemiparesis, hemiplegia, human trafficking, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, miscarriage, NAF, National Ataxia Foundation, neuropsychiatry, operation, perspective, pneumonia, pregnancy, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
It’s [already] been a long day… But it’ll get better. :)
I don’t know what triggers me anymore. What’s wrong? Oh, nothing, really. I’m just anxious. Depressed. Broken. Angry. Tired. Bored. Busy. Aphasiac. Worthless. A burden. A hindrance. Frustrated. ‘Lazy’. Working my ass off to simply go check the mail. Tired. Useless. Stressed. Worried. Frustrated. (Yes, let’s list that one again.) I’m in everyone’s way, all…
ellie
ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar II disorder, brain injury, Brainstem, brainstem stroke, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, ischaemic stroke, ischemic stroke, left hemisphere ischemia, major depressive disorder, MDD, perspective, Recovery, stigma, stroke, stroke recovery, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS -
Misremembering is better than forgetting
Remembering Grace, again. And again. This year, I thought it would be 9 years within the hour. Nope. It’ll be 9 years in 48 hours and 38 minutes. Memory difficulties suck. She’d be 8 this July. There’s too much to write. I’ll sleep on it. Thinking of you, Gracie. Always am. ❤
ellie
ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, D&C, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, left hemisphere ischemia, major depressive disorder, MDD, miscarriage, neuropsychiatry, operation, perspective, pregnancy, rape, Recovery, sexual abuse, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS