Tag: hardship
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14 and 8
So, I didn’t mention it on the 11th because sometimes you just have to make happy, and this month has been a good month. Valentine’s Day marks 14 years and 3 days since the night I made a decision that resulted in a car wreck, which killed Gracie. I don’t know if her father gets…
ellie
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What it is to burn
July 24, 2019 The confusion and my slowed heart rate made it hard for me to make sense of things. Stumbling into the living room, I called the Dr. Scheiss’ office. Dr. Scheiss’ nurse practitioner answered and I began telling her things – I don’t remember what things. Then it was the nurse practitioner, the…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, Cerebellum, DBS, deep brain stimulation, depression, disability, Dr. Mya Scheiss, GAD, generalized anxiety disorder, hardship, life is beautiful, major depressive disorder, MDD, Memorial Hermann, Memorial Hermann Hospital, seizure, seizures, stigma, Suicide, TIRR, trauma, young adult stroke, Young stroke, young stroke survivor, YSS -
Missing out but it’s fine
Today my Wednesday art class had a video chat lunch together, and I had been looking forward to it since Rafferty first mentioned it a week ago. But I must have needed a rest day today. I woke up late, again, and got ready. I washed my face and threw on the tiny bit of…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, depression, diagnosis, disability, generalized anxiety disorder, handicap, hardship, ischaemic stroke, ischemic stroke, life is beautiful, major depressive disorder, MDD, perspective, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS -
7
I’m 7 years old today. Technically not, of course, but my life started over 7 years ago today. It started with learning to breathe on my own, then rolling over. Then sitting up; crawling; motorized wheelchair; sitting unassisted; standing; walking with 3 people helping me, then one. Then a walker. Then a cane. Then nothing.…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, Ataxia & Fitness, bipolar, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, HCM, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Memorial Hermann Hospital, operation, perspective, pneumonia, Recovery, seizure, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
Thank you
The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen. Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brainstem stroke, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Medtronic DBS, neuropsychiatry, perspective, Recovery, social issue, stigma, stroke, stroke recovery, The Stroke Story, trauma, young adult stroke, Young stroke, young stroke survivor, YSS -
Harvey
Last night I remembered how scared, how alone I’d been during hurricane Harvey. Yeah, I’d busied myself with packing donations. That was before I’d realized I couldn’t get out of the apartment building, or that the atmospheric pressure changes had impacted me as they had. I’m embarrassed to have been so affected when others lived…
ellie
#LifeIsBeautiful, ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, H-Town, handicap, hardship, hemiparesis, Houston, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, neuropsychiatry, perspective, Recovery, seizure, seizures, stroke, stroke recovery, The Stroke Story, trauma, Tremor, tremor disorder, West University Place -
Journal entry #4
Tomorrow, I will be cheerful. Tomorrow, I will be positive. Tomorrow, I will have energy. Because today, I just can’t. Today I am hurting. Today, I am not okay. And that is perfectly fine. Just writing that made me smile. See? Already getting there. 🙂
ellie
ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, depression, diagnosis, disability, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, miscarriage, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
Misremembering is better than forgetting
Remembering Grace, again. And again. This year, I thought it would be 9 years within the hour. Nope. It’ll be 9 years in 48 hours and 38 minutes. Memory difficulties suck. She’d be 8 this July. There’s too much to write. I’ll sleep on it. Thinking of you, Gracie. Always am. ❤
ellie
ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, D&C, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, left hemisphere ischemia, major depressive disorder, MDD, miscarriage, neuropsychiatry, operation, perspective, pregnancy, rape, Recovery, sexual abuse, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS -
‘Lucky #13’
So, I just checked my email. Thanks to everyone who takes the time to read this! Thanks, Alex, for writing about your stroke; it was the first book I had read after mine. Feedspot Top 25
ellie
ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS -
:)
Vertigo is kicking my butt today. I’m unable to turn my head and less I do it slowly, lest I want the sudden, overwhelming dizziness to attack. It doesn’t help that I’ve been instructed by one of my doctors to reduce a medication that has a side effect of vertigo, blurred vision and nausea during…
ellie
ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, Medtronic DBS, Mischer Neuroscience Institute, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, Recovery, seizure, seizures, slavery, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS
It's never been better 