Tag: hypertrophic cardiomyopathy

• I was able to play what???

  

  Browsing YouTube earlier, as people do the day after Christmas (I guess?), I stumbled across the very last piece I learned to play as a performance major. I don’t know how I can remember it, but I do. The sheet music is tucked away in the vocal sheetmusic book I’d taken to Carnegie Hall ten years ago. I…

  ellie

  December 26, 2017

  Memories, Random Posts, The Fourth Year, The Stroke Story

  ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, Asturias, Asturias (Leyenda), ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiomyopathy, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, classical guitar, disability, Francisco Tárrega, GAD, generalized anxiety disorder, handicap, hemiparesis, hypertrophic cardiomyopathy, Intention tremor, Isaac Albéniz, ischaemic stroke, ischemic stroke, Juan Quesada, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, perspective, Recovery, Rosendo Reyna, stroke, stroke recovery, TBI, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• ‘Lucky #13’

  

  So, I just checked my email. Thanks to everyone who takes the time to read this! Thanks, Alex, for writing about your stroke; it was the first book I had read after mine. Feedspot Top 25

  ellie

  December 15, 2017

  Random Posts, The Fourth Year, The Stroke Story, Updates

  ABI, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, young adult stroke, Young stroke, young stroke survivor, YSS

• I won’t quit

  

  I stumble across the neverending desert, sand filling my shoes and rubbing skin from my ankles. Sunlight and heat glare and roast my tired body, and I continue to stumble forward, frustrated and angry. I’m just as aware of my unlikely survival as I am of the maggots wriggling while they eating away the pia mater covering…

  ellie

  December 11, 2017

  Random Posts, The Fourth Year, The Stroke Story, Writing

  acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, depression, disability, GAD, generalized anxiety disorder, handicap, hemiparesis, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, neuropsychiatrist, neuropsychiatry, perspective, Recovery, seizure, seizures, sexual abuse, stroke, stroke recovery, TBI, The Stroke Story, trauma, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• :)

  Vertigo is kicking my butt today. I’m unable to turn my head and less I do it slowly, lest I want the sudden, overwhelming dizziness to attack. It doesn’t help that I’ve been instructed by one of my doctors to reduce a medication that has a side effect of vertigo, blurred vision and nausea during…

  ellie

  December 6, 2017

  ataxia, Ramblings, Random Posts, The Fourth Year, The Stroke Story, Uncategorized

  ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, Medtronic DBS, Mischer Neuroscience Institute, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, Recovery, seizure, seizures, slavery, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• Updatiness!

  It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds  at McGovern.  The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us…

  ellie

  September 22, 2017

  ataxia, Ramblings, Random Posts, The Stroke Story, The Third Year, Updates

  ABI, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem stroke, cardiomyopathy, cerebellar ataxia, cerebellar stroke, Cerebellum, disability, handicap, hemiparesis, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, neuropsychiatrist, neuropsychiatry, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• A random little thing

  Okay, so, this was originally a comment response to a post on the Young Stroke Survivors Facebook group. But it turned into a really long comment so I decided to turn it into a blog post. Yay. °°° Note that there are many factors in play when it comes to physical and non-physical recovery, such…

  ellie

  September 18, 2017

  Ramblings, Random Posts, The Stroke Story, The Third Year, Updates, Writing

  ABI, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, cerebellar ataxia, cerebellar stroke, Cerebellum, depression, disability, handicap, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Memorial Park, miscarriage, Mischer Neuroscience Institute, operation, pneumonia, Recovery, seizure, seizures, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• The Quitter

  Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

  ellie

  May 10, 2017

  Poetry, Random Posts, The Third Year

  ABI, acquired brain injury, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, disability, FA, FARA, Friedreich’s Ataxia, handicap, HandiQueers, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, Mount Kilimanjaro, NAF, National Ataxia Foundation, operation, pneumonia, Recovery, seizure, seizures, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• Better Than New 

  After my last post, my friend, Elizabeth, wrote this to me: ‘Ellie if you are feeling broken, please remember the Japanese process of Kintsugi. Pottery that is broken is repaired with gold. It highlights that the mended repair is beautiful. It emphasizes  beauty in the imperfect. Perfection  is overrated. Your brain is wonderful just the…

  ellie

  March 31, 2017

  The Third Year, Tips

  ABI, acquired brain injury, anomia, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, disability, FA, Friedreich’s Ataxia, handicap, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, miscarriage, MRI, operation, pneumonia, pregnancy, rape, Recovery, seizure, seizures, sexual abuse, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• To Mars and back

  2017 didn’t make it past its first day before someone with Ataxia went away. She touched so many lives during her 25 years here. This morning, Noelle and Allie – a couple of my favorite people whom I met through Ataxia & Fitness – were absolutely… I don’t know. I don’t speak for them, but “heartbroken” and “stunned” are a…

  ellie

  January 1, 2017

  The Stroke Story, The Third Year, Updates

  ataxia, Ataxia & Fitness, cardiac arrest, cardiomyopathy, disability, FA, FARA, Friedreich’s Ataxia, handicap, HandiQueers, HCM, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, LGBTQ