Archives

I was able to play what???

Browsing YouTube earlier, as people do the day after Christmas (I guess?), I stumbled across the very last piece I learned to play as a performance major. I don’t know how I can remember it, but I do. The sheet music is tucked away in the vocal sheetmusic book I’d taken to Carnegie Hall ten years ago. I […]

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‘Lucky #13’

So, I just checked my email. Thanks to everyone who takes the time to read this! Thanks, Alex, for writing about your stroke; it was the first book I had read after mine. Feedspot Top 25

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I won’t quit

I stumble across the neverending desert, sand filling my shoes and rubbing skin from my ankles. Sunlight and heat glare and roast my tired body, and I continue to stumble forward, frustrated and angry. I’m just as aware of my unlikely survival as I am of the maggots wriggling while they eating away the pia mater covering […]

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:)

Vertigo is kicking my butt today. I’m unable to turn my head and less I do it slowly, lest I want the sudden, overwhelming dizziness to attack. It doesn’t help that I’ve been instructed by one of my doctors to reduce a medication that has a side effect of vertigo, blurred vision and nausea during […]

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Updatiness!

It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds  at McGovern.  The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us […]

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A random little thing

Okay, so, this was originally a comment response to a post on the Young Stroke Survivors Facebook group. But it turned into a really long comment so I decided to turn it into a blog post. Yay. °°° Note that there are many factors in play when it comes to physical and non-physical recovery, such […]

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The Quitter

Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

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Better Than New 

After my last post, my friend, Elizabeth, wrote this to me: ‘Ellie if you are feeling broken, please remember the Japanese process of Kintsugi. Pottery that is broken is repaired with gold. It highlights that the mended repair is beautiful. It emphasizes  beauty in the imperfect. Perfection  is overrated. Your brain is wonderful just the […]

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To Mars and back

2017 didn’t make it past its first day before someone with Ataxia went away. She touched so many lives during her 25 years here. This morning, Noelle and Allie – a couple of my favorite people whom I met through Ataxia & Fitness – were absolutely… I don’t know. I don’t speak for them, but “heartbroken” and “stunned” are a […]

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