Tag: Memorial Hermann

What it is to burn

July 24, 2019 The confusion and my slowed heart rate made it hard for me to make sense of things. Stumbling into the living room, I called the Dr. Scheiss’ office. Dr. Scheiss’ nurse practitioner answered and I began telling her things – I don’t remember what things. Then it was the nurse practitioner, the…

ellie

August 19, 2020

Updates

#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, Cerebellum, DBS, deep brain stimulation, depression, disability, Dr. Mya Scheiss, GAD, generalized anxiety disorder, hardship, life is beautiful, major depressive disorder, MDD, Memorial Hermann, Memorial Hermann Hospital, seizure, seizures, stigma, Suicide, TIRR, trauma, young adult stroke, Young stroke, young stroke survivor, YSS
Why I haven’t been posting

Shit happens. I’m in an “up cycle” right now. That’s why I have the energy and motivation to post. Bipolar disorder is far more than just mood swings. So, here what is happening this week: I’ll have phenol injections. Ow. I had a seizure during the last phenol session. This should be fun! Then I’ll…

ellie

March 10, 2020

ataxia, The Sixth Year, Updates

#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, ataxia, bipolar, bipolar disorder, bipolar II disorder, brain injury, brain stem tremor, Brainstem, brainstem stroke, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, diagnosis, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, handicap, hemiparesis, ICD, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, operation, Recovery, seizure, seizures, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS
New batteries make my brain go ’round

I squealed after setting my cell phone on the kitchen counter and excitedly bounced on my toes – while holding onto the counter, of course – for a moment, then turned to place my medicine bottles back in the cupboard above my head. It must seen strange, my looking forward to another surgery. Let me…

ellie

January 26, 2018

ataxia, Ramblings, The Fourth Year, The Stroke Story, Uncategorized, Updates

ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, handicap, hemiparesis, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS
Updatiness!

It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds at McGovern. The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us…

ellie

September 22, 2017

ataxia, Ramblings, Random Posts, The Stroke Story, The Third Year, Updates

ABI, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem stroke, cardiomyopathy, cerebellar ataxia, cerebellar stroke, Cerebellum, disability, handicap, hemiparesis, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, neuropsychiatrist, neuropsychiatry, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS
A random little thing

Okay, so, this was originally a comment response to a post on the Young Stroke Survivors Facebook group. But it turned into a really long comment so I decided to turn it into a blog post. Yay. °°° Note that there are many factors in play when it comes to physical and non-physical recovery, such…

ellie

September 18, 2017

Ramblings, Random Posts, The Stroke Story, The Third Year, Updates, Writing

ABI, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, cerebellar ataxia, cerebellar stroke, Cerebellum, depression, disability, handicap, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Memorial Park, miscarriage, Mischer Neuroscience Institute, operation, pneumonia, Recovery, seizure, seizures, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS
-364 days

1 year ago – Monday, May 16 2016 I waited, excited and nervous. Tomorrow. A burr hole will expose the surface of my brain for the very first time… tomorrow. Less than 24 hours. I don’t remember what I did that morning, or the days leading up to it. I know that I watched videos…

ellie

May 16, 2017

ataxia, Memories, Photos, The Stroke Story, The Third Year, Updates, Videos

ABI, acquired brain injury, ataxia, awake brain surgery, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, FA, FARA, Friedreich’s Ataxia, handicap, hemiparesis, Houston Medical Center, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, NAF, National Ataxia Foundation, operation, Recovery, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, Videos, young adult stroke, Young stroke, young stroke survivor, YSS
The Quitter

Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

ellie

May 10, 2017

Poetry, Random Posts, The Third Year

ABI, acquired brain injury, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, disability, FA, FARA, Friedreich’s Ataxia, handicap, HandiQueers, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, Mount Kilimanjaro, NAF, National Ataxia Foundation, operation, pneumonia, Recovery, seizure, seizures, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS
Well, that was sort of an earthquake…

It was a little before 11 in the morning and I’d already up hours. I flopped down onto the couch after my final set of squats. Pulling out my phone, I scrolled through my Facebook feed for a few minutes after finishing my morning workout. Time to catch a breather before eating my second meal…

ellie

September 14, 2016

Ramblings, Random Posts, The Second Year, The Stroke Story, Updates

ABI, acquired brain injury, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, disability, hemiparesis, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, operation, Recovery, seizure, seizures, stroke, stroke recovery, TBI, The Stroke Story, TIRR, Tremor, tremor disorder, trike, visual field cut, young adult stroke, Young stroke, YSS
Vertigo cont. plus an AFO!

“May I have your date of birth and is the member ID number on the back of your insurance card?” I wanted to cry. My prescription was going to be filled and, soon, the world would stop spinning and I’d be able to close my eyes without feeling this feeling. Vertigo sucks. I read my…

ellie

August 5, 2016

The Second Year, The Stroke Story, Updates, Writing

ABI, acquired brain injury, AFO, Allard, ankle foot orthosis, anomia, aphasia, ataxia, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, depression, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Hermann, Peace Cycling Performance, Recovery, Steven Peace, stroke, stroke recovery, The Stroke Story, TIRR, Tremor, tremor disorder, trike, young adult stroke, Young stroke, young stroke survivor, YSS
WARNING: Graphic content. Don’t look at this post if you don’t want to see brain surgery

I’ll post the videos in just a bit.

ellie

May 23, 2016

Photos, The Stroke Story, The Third Year, Updates

ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, hemiplegia, Houston Medical Center, Intention tremor, ischaemic stroke, left hemisphere ischemia, Memorial Hermann, Mischer Neuroscience Institute, MRI, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, Tremor, tremor disorder, young adult stroke, Young stroke, YSS