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What it is to burn
Posted on August 19, 2020 1 Comment
July 24, 2019 The confusion and my slowed heart rate made it hard for me to make sense of things. Stumbling into the living room, I called the Dr. Scheiss’ office. Dr. Scheiss’ nurse practitioner answered and I began telling her things – I don’t remember what things. Then it was the nurse practitioner, the […]
Why I haven’t been posting
Posted on March 10, 2020 3 Comments
Shit happens. I’m in an “up cycle” right now. That’s why I have the energy and motivation to post. Bipolar disorder is far more than just mood swings. So, here what is happening this week: I’ll have phenol injections. Ow. I had a seizure during the last phenol session. This should be fun! Then I’ll […]
New batteries make my brain go ’round
Posted on January 26, 2018 Leave a Comment
I squealed after setting my cell phone on the kitchen counter and excitedly bounced on my toes – while holding onto the counter, of course – for a moment, then turned to place my medicine bottles back in the cupboard above my head. It must seen strange, my looking forward to another surgery. Let me […]
Updatiness!
Posted on September 22, 2017 Leave a Comment
It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds at McGovern. The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us […]
A random little thing
Posted on September 18, 2017 3 Comments
Okay, so, this was originally a comment response to a post on the Young Stroke Survivors Facebook group. But it turned into a really long comment so I decided to turn it into a blog post. Yay. °°° Note that there are many factors in play when it comes to physical and non-physical recovery, such […]
-364 days
Posted on May 16, 2017 Leave a Comment

1 year ago – Monday, May 16 2016 I waited, excited and nervous. Tomorrow. A burr hole will expose the surface of my brain for the very first time… tomorrow. Less than 24 hours. I don’t remember what I did that morning, or the days leading up to it. I know that I watched videos […]
The Quitter
Posted on May 10, 2017 Leave a Comment
Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service
Well, that was sort of an earthquake…
Posted on September 14, 2016 Leave a Comment

It was a little before 11 in the morning and I’d already up hours. I flopped down onto the couch after my final set of squats. Pulling out my phone, I scrolled through my Facebook feed for a few minutes after finishing my morning workout. Time to catch a breather before eating my second meal […]
Vertigo cont. plus an AFO!
Posted on August 5, 2016 Leave a Comment

“May I have your date of birth and is the member ID number on the back of your insurance card?” I wanted to cry. My prescription was going to be filled and, soon, the world would stop spinning and I’d be able to close my eyes without feeling this feeling. Vertigo sucks. I read my […]
WARNING: Graphic content. Don’t look at this post if you don’t want to see brain surgery
Posted on May 23, 2016 Leave a Comment
I’ll post the videos in just a bit.