#LifeIsBeautiful

Posted on May 17, 2018     Leave a Comment

We have no control over it, but what we do have control over is whether we can be proud of our own lives. I mean, that’s something we have complete say over – it’s kind of hard to even describe – I think I’m just as confused as everyone else on how to make our lives a piece of art, but I think that’s part of the joy – simply trying.

I can stand up here and genuinely tell you that I am genuinely proud of my life…

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Journal entry #1

Posted on December 7, 2017     Leave a Comment

I wake rather late, but cheerful nonetheless. I don’t feel entirely cheerful; it’s a chilly, rainy morning and I know that I might get low if I don’t urge myself not to. I wobble into the kitchen. Make tea. Start the monotonous routine I’ve come to know since the “lows” made their appearance known a […]

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Chelsea

Posted on July 7, 2017     Leave a Comment

Chelsea Davidson 7/28/87 – 7/6/17 29 years, 11 months, 3 weeks, 1 day *** Chelsea,  I only met you once, however, that was enough to realize how you could impact people – you left an impression on me with the first bright, happy smile you greeted me with. Christy, John and Brendan are devastated, along […]

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-364 days

Posted on May 16, 2017     Leave a Comment

1 year ago – Monday, May 16 2016 I waited, excited and nervous. Tomorrow. A burr hole will expose the surface of my brain for the very first time… tomorrow. Less than 24 hours. I don’t remember what I did that morning, or the days leading up to it. I know that I watched videos […]

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The Quitter

Posted on May 10, 2017     Leave a Comment

Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

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Brad

Posted on February 5, 2017     2 Comments

Brad Blaes  5/14/1987 – 2/7/2017 Spinocerebellar Ataxia type 3

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