Archives
Thank you
Posted on September 4, 2018 Leave a Comment
The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen.
Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set of non-toxic, skin-safe markers. Now I draw on myself…
Harvey
Posted on August 12, 2018 Leave a Comment
Last night I remembered how scared, how alone I’d been during hurricane Harvey. Yeah, I’d busied myself with packing donations. That was before I’d realized I couldn’t get out of the apartment building, or that the atmospheric pressure changes had impacted me as they had. I’m embarrassed to have been so affected when others lived […]
#LifeIsBeautiful
Posted on May 17, 2018 Leave a Comment
We have no control over it, but what we do have control over is whether we can be proud of our own lives. I mean, that’s something we have complete say over – it’s kind of hard to even describe – I think I’m just as confused as everyone else on how to make our lives a piece of art, but I think that’s part of the joy – simply trying.
I can stand up here and genuinely tell you that I am genuinely proud of my life…
Journal entry #7
Posted on May 14, 2018 1 Comment
Have you ever been sitting around, doing whatever, and then suddenly and out of nowhere you feel… different, somehow? Sort of like you’ve been locked in your body for several years and you’ve just woken up, even though you’ve been conscious all those years, you’re suddenly… aware. Alive, again. This might seem odd but something […]
Misremembering is better than forgetting
Posted on February 11, 2018 Leave a Comment
Remembering Grace, again. And again. This year, I thought it would be 9 years within the hour. Nope. It’ll be 9 years in 48 hours and 38 minutes. Memory difficulties suck. She’d be 8 this July. There’s too much to write. I’ll sleep on it. Thinking of you, Gracie. Always am. ❤
Journal entry #3
Posted on December 13, 2017 Leave a Comment
I’ve left the apartment three times in the last week and a half, maybe. Once to Jamie and Tim’s house to create characters for a new campaign *pushes glasses up nose*, and the other two times were probably something small; I don’t remember exactly what. My world currently consists of what’s contained inside of this 900 […]
I won’t quit
Posted on December 11, 2017 Leave a Comment
I stumble across the neverending desert, sand filling my shoes and rubbing skin from my ankles. Sunlight and heat glare and roast my tired body, and I continue to stumble forward, frustrated and angry. I’m just as aware of my unlikely survival as I am of the maggots wriggling while they eating away the pia mater covering […]
Journal entry #1
Posted on December 7, 2017 Leave a Comment
I wake rather late, but cheerful nonetheless. I don’t feel entirely cheerful; it’s a chilly, rainy morning and I know that I might get low if I don’t urge myself not to. I wobble into the kitchen. Make tea. Start the monotonous routine I’ve come to know since the “lows” made their appearance known a […]
:)
Posted on December 6, 2017 Leave a Comment
Vertigo is kicking my butt today. I’m unable to turn my head and less I do it slowly, lest I want the sudden, overwhelming dizziness to attack. It doesn’t help that I’ve been instructed by one of my doctors to reduce a medication that has a side effect of vertigo, blurred vision and nausea during […]
Updatiness!
Posted on September 22, 2017 Leave a Comment
It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds at McGovern. The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us […]
