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What it is to burn
Posted on August 19, 2020 1 Comment
July 24, 2019 The confusion and my slowed heart rate made it hard for me to make sense of things. Stumbling into the living room, I called the Dr. Scheiss’ office. Dr. Scheiss’ nurse practitioner answered and I began telling her things – I don’t remember what things. Then it was the nurse practitioner, the […]
Missing out but it’s fine
Posted on April 23, 2020 Leave a Comment
Today my Wednesday art class had a video chat lunch together, and I had been looking forward to it since Rafferty first mentioned it a week ago. But I must have needed a rest day today. I woke up late, again, and got ready. I washed my face and threw on the tiny bit of […]
7
Posted on November 2, 2019 Leave a Comment
I’m 7 years old today. Technically not, of course, but my life started over 7 years ago today. It started with learning to breathe on my own, then rolling over. Then sitting up; crawling; motorized wheelchair; sitting unassisted; standing; walking with 3 people helping me, then one. Then a walker. Then a cane. Then nothing. […]
#sorrynotsorry
Posted on July 28, 2019 Leave a Comment
Our Father Who art in heaven Seriously? What the actual fuck. Sincerely, Tired-and-so-done-with-being-a-patient/room-number
5
Posted on January 5, 2019 2 Comments
I’m 5 years, 2 months and 2 days post-stroke. (Likely 5 years, 2 months and 3 days, by the time I finish writing this. It’s late.) 5 years. 5. That’s half a decade. Oy. 3 months and 4 days since I last updated this site. Sorry about that; I just wanted to step back for […]
Thank you
Posted on September 4, 2018 Leave a Comment
The last time I did it to myself, I didn’t realize what I was doing until it was done, but I knew it was coming, and that whatever it was, it was about to happen.
Adam noticed it while it was healing, showed me the below image, then ordered and surprised me with a set of non-toxic, skin-safe markers. Now I draw on myself…
Journal entry #4
Posted on August 11, 2018 1 Comment
Tomorrow, I will be cheerful. Tomorrow, I will be positive. Tomorrow, I will have energy. Because today, I just can’t. Today I am hurting. Today, I am not okay. And that is perfectly fine. Just writing that made me smile. See? Already getting there. 🙂
#LifeIsBeautiful
Posted on May 17, 2018 Leave a Comment
We have no control over it, but what we do have control over is whether we can be proud of our own lives. I mean, that’s something we have complete say over – it’s kind of hard to even describe – I think I’m just as confused as everyone else on how to make our lives a piece of art, but I think that’s part of the joy – simply trying.
I can stand up here and genuinely tell you that I am genuinely proud of my life…
Journal entry #7
Posted on May 14, 2018 1 Comment
Have you ever been sitting around, doing whatever, and then suddenly and out of nowhere you feel… different, somehow? Sort of like you’ve been locked in your body for several years and you’ve just woken up, even though you’ve been conscious all those years, you’re suddenly… aware. Alive, again. This might seem odd but something […]
It’s [already] been a long day… But it’ll get better. :)
Posted on March 21, 2018 3 Comments
I don’t know what triggers me anymore. What’s wrong? Oh, nothing, really. I’m just anxious. Depressed. Broken. Angry. Tired. Bored. Busy. Aphasiac. Worthless. A burden. A hindrance. Frustrated. ‘Lazy’. Working my ass off to simply go check the mail. Tired. Useless. Stressed. Worried. Frustrated. (Yes, let’s list that one again.) I’m in everyone’s way, all […]
