Tag: TIRR

• 1 year

  I left the hospital exactly one year ago today.

  ellie

  August 24, 2020

  Memories, Photos, The Sixth Year

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, acquired brain injury, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, brain injury, Brainstem, brainstem stroke, cerebellar stroke, Cerebellum, disability, generalized anxiety disorder, ischaemic stroke, ischemic stroke, left hemisphere ischemia, life is beautiful, neuropsychiatrist, neuropsychiatry, perspective, Recovery, seizure, seizures, Suicide, The Stroke Story, TIRR, young adult stroke, Young stroke, young stroke survivor, YSS

• What it is to burn

  July 24, 2019 The confusion and my slowed heart rate made it hard for me to make sense of things. Stumbling into the living room, I called the Dr. Scheiss’ office. Dr. Scheiss’ nurse practitioner answered and I began telling her things – I don’t remember what things. Then it was the nurse practitioner, the…

  ellie

  August 19, 2020

  Updates

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, anomia, aphasia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, Cerebellum, DBS, deep brain stimulation, depression, disability, Dr. Mya Scheiss, GAD, generalized anxiety disorder, hardship, life is beautiful, major depressive disorder, MDD, Memorial Hermann, Memorial Hermann Hospital, seizure, seizures, stigma, Suicide, TIRR, trauma, young adult stroke, Young stroke, young stroke survivor, YSS

• 7

  I’m 7 years old today. Technically not, of course, but my life started over 7 years ago today. It started with learning to breathe on my own, then rolling over. Then sitting up; crawling; motorized wheelchair; sitting unassisted; standing; walking with 3 people helping me, then one. Then a walker. Then a cane. Then nothing.…

  ellie

  November 2, 2019

  ataxia, Memories, Ramblings, The Seventh Year, Updates, Writing

  #DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, Ataxia & Fitness, bipolar, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, HCM, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Memorial Hermann Hospital, operation, perspective, pneumonia, Recovery, seizure, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• Updatiness!

  It’s been awhile. Again. So here’s an update! I’m no longer working toward completing degrees in linguistic cryptanalysis. I’ve turned my attention to neuroanatomical artistry, general watercolor, and enjoying having a reason to attend Grand rounds  at McGovern.  The Ataxia community has seen multiple deaths this year. Considering how rare Ataxia is, many of us…

  ellie

  September 22, 2017

  ataxia, Ramblings, Random Posts, The Stroke Story, The Third Year, Updates

  ABI, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, brainstem stroke, cardiomyopathy, cerebellar ataxia, cerebellar stroke, Cerebellum, disability, handicap, hemiparesis, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, neuropsychiatrist, neuropsychiatry, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• A random little thing

  Okay, so, this was originally a comment response to a post on the Young Stroke Survivors Facebook group. But it turned into a really long comment so I decided to turn it into a blog post. Yay. °°° Note that there are many factors in play when it comes to physical and non-physical recovery, such…

  ellie

  September 18, 2017

  Ramblings, Random Posts, The Stroke Story, The Third Year, Updates, Writing

  ABI, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, cerebellar ataxia, cerebellar stroke, Cerebellum, depression, disability, handicap, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Memorial Park, miscarriage, Mischer Neuroscience Institute, operation, pneumonia, Recovery, seizure, seizures, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS

• -364 days

  

  1 year ago – Monday, May 16 2016 I waited, excited and nervous. Tomorrow. A burr hole will expose the surface of my brain for the very first time… tomorrow. Less than 24 hours. I don’t remember what I did that morning, or the days leading up to it. I know that I watched videos…

  ellie

  May 16, 2017

  ataxia, Memories, Photos, The Stroke Story, The Third Year, Updates, Videos

  ABI, acquired brain injury, ataxia, awake brain surgery, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, Dr. Albert Fenoy, Dr. Mya Scheiss, FA, FARA, Friedreich’s Ataxia, handicap, hemiparesis, Houston Medical Center, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, NAF, National Ataxia Foundation, operation, Recovery, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, Videos, young adult stroke, Young stroke, young stroke survivor, YSS

• The Quitter

  Just have one more try. It’s dead easy to die, It’s the living on that’s hard. “The Quitter” by Robert Williams Service

  ellie

  May 10, 2017

  Poetry, Random Posts, The Third Year

  ABI, acquired brain injury, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, disability, FA, FARA, Friedreich’s Ataxia, handicap, HandiQueers, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, Mount Kilimanjaro, NAF, National Ataxia Foundation, operation, pneumonia, Recovery, seizure, seizures, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, young adult stroke, Young stroke, young stroke survivor, YSS

• Well, that was sort of an earthquake…

  

  It was a little before 11 in the morning and I’d already up hours. I flopped down onto the couch after my final set of squats. Pulling out my phone, I scrolled through my Facebook feed for a few minutes after finishing my morning workout. Time to catch a breather before eating my second meal…

  ellie

  September 14, 2016

  Ramblings, Random Posts, The Second Year, The Stroke Story, Updates

  ABI, acquired brain injury, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, disability, hemiparesis, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, operation, Recovery, seizure, seizures, stroke, stroke recovery, TBI, The Stroke Story, TIRR, Tremor, tremor disorder, trike, visual field cut, young adult stroke, Young stroke, YSS

• Seizures suck.

  A very quick recap of yesterday: I began having seizures just before 11am CT yesterday. I don’t remember much and was pretty confused for a while. Anyway, I’m home now and am getting scheduled for tests this week. Jeffrey’s DBS surgery is early tomorrow morning; I’m hoping that I can still go to that.  The…

  ellie

  September 12, 2016

  The Second Year, The Stroke Story, Updates

  ABI, acquired brain injury, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, disability, hemiparesis, hemiplegia, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Mischer Neuroscience Institute, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, YSS

• Vertigo cont. plus an AFO!

  

  “May I have your date of birth and is the member ID number on the back of your insurance card?” I wanted to cry. My prescription was going to be filled and, soon, the world would stop spinning and I’d be able to close my eyes without feeling this feeling. Vertigo sucks. I read my…

  ellie

  August 5, 2016

  The Second Year, The Stroke Story, Updates, Writing

  ABI, acquired brain injury, AFO, Allard, ankle foot orthosis, anomia, aphasia, ataxia, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, depression, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Memorial Hermann, Peace Cycling Performance, Recovery, Steven Peace, stroke, stroke recovery, The Stroke Story, TIRR, Tremor, tremor disorder, trike, young adult stroke, Young stroke, young stroke survivor, YSS