Tag: visual field cut
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7
I’m 7 years old today. Technically not, of course, but my life started over 7 years ago today. It started with learning to breathe on my own, then rolling over. Then sitting up; crawling; motorized wheelchair; sitting unassisted; standing; walking with 3 people helping me, then one. Then a walker. Then a cane. Then nothing.…
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, Ataxia & Fitness, bipolar, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, depression, diagnosis, disability, GAD, generalized anxiety disorder, handicap, hardship, HCM, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, life is beautiful, major depressive disorder, MDD, Memorial Hermann Hospital, operation, perspective, pneumonia, Recovery, seizure, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
#sorrynotsorry
Our Father Who art in heaven Seriously? What the actual fuck. Sincerely, Tired-and-so-done-with-being-a-patient/room-number
ellie
#DespiteDisability, #LifeIsBeautiful, #NeverGiveUp, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, awake brain surgery, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, D&C, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, human trafficking, hurricane, hurricane Harvey, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, Medtronic DBS, miscarriage, MRI, neuropsychiatrist, neuropsychiatry, operation, perspective, pneumonia, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor -
#LifeIsBeautiful
We have no control over it, but what we do have control over is whether we can be proud of our own lives. I mean, that’s something we have complete say over – it’s kind of hard to even describe – I think I’m just as confused as everyone else on how to make our…
ellie
#LifeIsBeautiful, ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, Claire Wineland, Cystic fibrosis, DBS, deep brain stimulation, depression, diagnosis, disability, FA, Friedreich’s Ataxia, GAD, generalized anxiety disorder, handicap, HandiQueers, hemiparesis, hemiplegia, human trafficking, hypertrophic cardiomyopathy, ICD, implantable cardioverter defibrillator, In Memory, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, life is beautiful, major depressive disorder, MDD, miscarriage, NAF, National Ataxia Foundation, neuropsychiatry, operation, perspective, pneumonia, pregnancy, rape, Recovery, seizure, seizures, sexual abuse, slave trade, slavery, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
Journal entry #7
Have you ever been sitting around, doing whatever, and then suddenly and out of nowhere you feel… different, somehow? Sort of like you’ve been locked in your body for several years and you’ve just woken up, even though you’ve been conscious all those years, you’re suddenly… aware. Alive, again. This might seem odd but something…
ellie
ABI, ACA, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, deep brain stimulation, depression, diagnosis, disability, generalized anxiety disorder, handicap, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, neuropsychiatry, perspective, Recovery, seizure, seizures, social issue, stigma, stroke, stroke recovery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
I won’t quit
I stumble across the neverending desert, sand filling my shoes and rubbing skin from my ankles. Sunlight and heat glare and roast my tired body, and I continue to stumble forward, frustrated and angry. I’m just as aware of my unlikely survival as I am of the maggots wriggling while they eating away the pia mater covering…
ellie
acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, asphyxiation, ataxia, bipolar, bipolar disorder, bipolar II disorder, bradycardia, brain injury, brain stem tremor, Brainstem, brainstem stroke, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, depression, disability, GAD, generalized anxiety disorder, handicap, hemiparesis, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, major depressive disorder, MDD, neuropsychiatrist, neuropsychiatry, perspective, Recovery, seizure, seizures, sexual abuse, stroke, stroke recovery, TBI, The Stroke Story, trauma, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
A random little thing
Okay, so, this was originally a comment response to a post on the Young Stroke Survivors Facebook group. But it turned into a really long comment so I decided to turn it into a blog post. Yay. °°° Note that there are many factors in play when it comes to physical and non-physical recovery, such…
ellie
ABI, Achilles International, Achilles International Houston, acquired ataxia, acquired brain injury, acquired cerebellar ataxia, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem stroke, cerebellar ataxia, cerebellar stroke, Cerebellum, depression, disability, handicap, hemiparesis, hemiplegia, Houston Chevron Marathon, Houston Medical Center, hypertrophic cardiomyopathy, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, Memorial Hermann, Memorial Hermann Hospital, Memorial Park, miscarriage, Mischer Neuroscience Institute, operation, pneumonia, Recovery, seizure, seizures, social issue, Spinocerebellar Ataxia, stigma, stroke, stroke recovery, TBI, The Stroke Story, TIRR, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
Better Than New
After my last post, my friend, Elizabeth, wrote this to me: ‘Ellie if you are feeling broken, please remember the Japanese process of Kintsugi. Pottery that is broken is repaired with gold. It highlights that the mended repair is beautiful. It emphasizes beauty in the imperfect. Perfection is overrated. Your brain is wonderful just the…
ellie
ABI, acquired brain injury, anomia, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cardiac arrest, cardiomyopathy, cardiovascular event, cerebellar ataxia, cerebellar ataxia brain stem, cerebellar stroke, Cerebellum, cerebral palsy, DBS, deep brain stimulation, depression, disability, FA, Friedreich’s Ataxia, handicap, hemiparesis, hemiplegia, hypertrophic cardiomyopathy, implantable cardioverter defibrillator, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, LGBTQ, miscarriage, MRI, operation, pneumonia, pregnancy, rape, Recovery, seizure, seizures, sexual abuse, Spinocerebellar Ataxia, stroke, stroke recovery, surgery, TBI, The Stroke Story, trauma, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS -
Well, that was sort of an earthquake…
It was a little before 11 in the morning and I’d already up hours. I flopped down onto the couch after my final set of squats. Pulling out my phone, I scrolled through my Facebook feed for a few minutes after finishing my morning workout. Time to catch a breather before eating my second meal…
ellie
ABI, acquired brain injury, aphasia, ataxia, awake brain surgery, bradycardia, bradycardic, brain injury, brain stem tremor, brain surgery, Brainstem, brainstem stroke, brainstem tremor, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, depression, disability, hemiparesis, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, Memorial Hermann, Memorial Hermann Hospital, Mischer Neuroscience Institute, MRI, operation, Recovery, seizure, seizures, stroke, stroke recovery, TBI, The Stroke Story, TIRR, Tremor, tremor disorder, trike, visual field cut, young adult stroke, Young stroke, YSS -
Seizures suck.
A very quick recap of yesterday: I began having seizures just before 11am CT yesterday. I don’t remember much and was pretty confused for a while. Anyway, I’m home now and am getting scheduled for tests this week. Jeffrey’s DBS surgery is early tomorrow morning; I’m hoping that I can still go to that. The…
ellie
ABI, acquired brain injury, anomia, aphasia, ataxia, bradycardia, bradycardic, brain injury, brain stem tremor, Brainstem, brainstem tremor, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, disability, hemiparesis, hemiplegia, Houston Medical Center, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Mischer Neuroscience Institute, operation, Recovery, stroke, stroke recovery, surgery, The Stroke Story, TIRR, Tremor, tremor disorder, visual field cut, young adult stroke, Young stroke, YSS -
Vertigo and Wernicke’s aphasia
ellie
ABI, acquired brain injury, anomia, aphasia, ataxia, brain injury, brain stem tremor, Brainstem, cardiovascular event, cerebellar ataxia, cerebellar stroke, Cerebellum, DBS, deep brain stimulation, disability, hemiparesis, Intention tremor, ischaemic stroke, ischemic stroke, kinetic tremor, left hemisphere ischemia, Medtronic DBS, prism glasses, prism lenses, Recovery, stroke, stroke recovery, The Stroke Story, TIRR, Tremor, visual field cut, young adult stroke, Young stroke, young stroke survivor, YSS
It's never been better 